August 19, 2021
Contact
Letisia Marquez
(626) 476-7593
lemarquez@coh.org

Leading Cancer Coalition Praises Passage of First-in-the-Nation California Cancer Patients Bill of Rights

California Legislature passes Cancer Patients Bill of Rights establishing six rights for cancer patients to ensure access to the care they need

Join Cancer Care is Different for a virtual event Friday, August 20, at 9:30 AM PT with remarks from Sen. Susan Rubio (D-District 22), Assemblymember Mike Gipson (D-District 64), City of Hope CEO Robert Stone, cancer survivor Kommah McDowell, Elizabeth Helms, President and CEO of the California Chronic Care Coalition, and Autumn Ogden-Smith from the American Cancer Society Cancer Action Network. Event details here.

DUARTE, Calif.Cancer Care Is Different, a coalition-based campaign effort to improve patient access to advanced cancer care in California, applauds the state Assembly’s unanimous passage of the Cancer Patients Bill of Rights (Senate Concurrent Resolution 11) today, joining the state Senate in adopting this resolution. The Cancer Patients Bill of Rights, which is the first of its kind in the nation, calls for six rights that every cancer patient in California should have from the moment of diagnosis to ensure they have access to the care that they need. 

The CDC lists cancer as the second-leading cause of death in California. Thanks to extraordinary medical breakthroughs, a cancer diagnosis is no longer a death sentence for many patients. But too many Californians cannot benefit from these lifesaving treatments due to one-size-fits-all policies that prevent access to the cancer care they deserve. Cancer patients in California should not be divided between the “haves” and “have nots” based on the type of health insurance they have: Every patient should have access to the appropriate treatment and care their diagnosis calls for in order to save lives and deliver the best possible health outcomes for cancer patients. 

Ensuring access to promising new innovations, experts specializing in various cancer types, and advances in personalized, precision cancer treatments are all critical components in improving outcomes and saving lives. The Cancer Patients Bill of Rights outlines six key principles, proclaiming that cancer patients have a right to:

  • Understand fully their diagnoses and be informed about treatment options in culturally appropriate and understandable languages;
  • Transparent and timely processes that ensure access to contracting oncology specialists, diagnostic testing, and accurate interpretations of those tests;
  • Contracting cancer subspecialists who have expertise in the treatment of their subtypes of cancers when complex decisions are needed;
  • Medical treatments for pain management and other services that support their overall health;
  • Contracting National Cancer Institute-designated comprehensive cancer centers and leading academic medical centers for the management of complex cancers that require multiple experts or high-risk or emerging therapies; and
  • Relevant clinical trials, medical research, and cutting-edge innovation, including evidence-supported precision medicine.

Sen. Susan Rubio (D-District 22) authored the California Cancer Patients Bill of Rights and championed the resolution. 

“Cancer patients need appropriate, timely, and equitable access to expert care,” Senator Susan Rubio said. “That’s why it was important for the Legislature to vote for and pass the California Cancer Patients Bill of Rights. There have been remarkable advances in science creating more effective treatments and cures, and it’s unconscionable that people, particularly those most vulnerable and in disadvantaged communities, suffer from a lack of access to these saving medications. I am proud to be part of the work needed to address these barriers to access and help build a healthier California.”    

Leaders of the Cancer Care Is Different initiative celebrate this important milestone in advancing patient access to lifesaving cancer care:

City of Hope

“We applaud the adoption of this Bill of Rights resolution as a first step toward addressing the gaps in access to specialty care that affect the more than 187,000 Californians diagnosed with cancer every year, particularly among underserved communities. City of Hope is proud to have driven this effort to build support for the rights of cancer patients and is grateful that the California State Legislature recognizes a fundamental fact: Because cancer care is different, cancer patients deserve these rights. We thank Senator Susan Rubio, Assembly Member Jim Wood and all the California legislators who championed the resolution.”

-Robert Stone, City of Hope President and CEO

American Cancer Society Cancer Action Network

“The Cancer Patients Bill of Rights stands as a bold statement of what every patient with cancer deserves – a full understanding of treatment options in culturally appropriate and understandable language, timely access to cancer subspecialists, and access to clinical trials and innovative treatments. We appreciate the California State Legislature for supporting cancer patients throughout the state.”

-Autumn J. Ogden-Smith, ACS CAN California State Legislative Director

California Chronic Care Coalition

“The Cancer Patients Bill of Rights raises critical awareness about the adverse patient impact caused by restricted access to specialized care and innovative treatments. On behalf of our alliance of consumers and providers, we commend our California policymakers for taking this important stand for cancer patients and doing what is right.”

-Elizabeth Helms, President and CEO of the California Chronic Care Coalition

International Myeloma Foundation

“We are thrilled that patients with myeloma across California will benefit from the state’s renewed commitment to accessible cancer care. The Cancer Patients Bill of Rights acknowledges the complexities and constantly evolving standard of cancer care for patients with cancers like myeloma, and we look forward to continuing to work to ensure patients have access to treatments that deliver the best outcomes.”

Robin Levy, IMF Senior Director, Public Policy & Advocacy

Coalition members are not alone in their support for greater access. According to a September 2020 survey conducted by Public Policy Polling, 82% of Californians believe it is very important for people with cancer to have access to specialized expertise or treatment regardless of their insurance plan limitations.

Additionally, several other community stakeholders across California have voiced support for the Cancer Patients Bill of Rights:

Glendale Chamber of Commerce

“The Cancer Patients Bill of Rights is an important step in bridging the gaps among our residents who are seeking high quality cancer care. We applaud the passage by both chambers of the State Legislature.”

-Judee Kendall, President-CEO

San Gabriel Valley Civic Alliance

“The Alliance thanks the California State Legislature for helping ensure access to cutting-edge treatments and clinical trials for at-risk citizens in San Gabriel Valley and throughout California.”

-Edward J. Rendon, Executive Director

Monrovia Chamber of Commerce

“The Monrovia Chamber of Commerce is proud to see SCR 11 passed by the Assembly as a commitment to ensure equitable, accessible cancer care for all. Remarkable advances in cancer science will continue to radically improve the lives of Californians, and this Bill of Rights will ensure patients can access these innovations.”

-Sari Canales, Executive Director

Cancer Care is Different would like to express gratitude to California Life Sciences, Cedars-Sinai and the Medical Oncology Association of Southern California, Inc., for supporting the passage of SCR 11. Cancer Care is Different stands ready to work with stakeholders to improve access and care delivery for all Californians with cancer. More information about the Cancer Patients Bill of Rights along with other resources and patient stories can be found at cancercarediff.org.

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About Cancer Care Is Different

Cancer Care Is Different is a coalition-based campaign effort with the goal of adopting a cancer patients bill of rights and raising awareness of the need to improve cancer care delivery in California. Partners in this effort include City of Hope, California Chronic Care Coalition, American Cancer Society Cancer Action Network and International Myeloma Foundation.

February 4, 2021
Contact
Letisia Marquez
(626) 476-7593
lemarquez@coh.org

New coalition launches bid for Cancer Patients Bill of Rights and multiyear Cancer Care Is Different platform

Introduced today in the state Senate, legislation details six rights for every cancer patient in California

Initiated by City of Hope, partners include American Cancer Society Cancer Action Network, California Chronic Care Coalition and International Myeloma Foundation

DUARTE, Calif. – Today, as communities and organizations across the globe commemorate World Cancer Day, a coalition of organizations are announcing a new campaign called Cancer Care Is Different, spearheaded by City of Hope, a world-renowned National Cancer Institute-designated comprehensive cancer center, American Cancer Society Cancer Action Network, California Chronic Care Coalition and International Myeloma Foundation. The campaign’s goal is to raise awareness about the adverse impact for patients that restricted access to leading cancer treatment centers, where the most advanced, life-saving therapeutics are available, causes, particularly during the COVID-19 pandemic, and to urge passage and adoption of a Cancer Patients Bill of Rights in the California Legislature.

The resolution, Senate Concurrent Resolution 11 (SCR 11), is authored by state Sen. Susan Rubio (D-Baldwin Park) and was introduced in the state Senate today. 

“For many cancer patients, the best chance of being cured is the early chance at a cure,” Rubio said. “Despite remarkable advances in cancer science creating more effective treatments and cures, too many cancer patients continue to suffer from a lack of access to specialty care. That lack of access is unfortunately even more pronounced among our most vulnerable and disadvantaged communities. The Cancer Patients Bill of Rights recognizes that cancer patients should receive appropriate, timely and equitable access to expert cancer care.”

“With our valued partners, City of Hope is proud to drive this effort to increase cancer patients’ access to the proper expertise and to make them aware of their rights to appropriate treatment options,” said Joseph Alvarnas, M.D., a hematologist-oncologist at City of Hope. “These needs are heightened by the reality that cancer is a complex and rapidly evolving field that requires ongoing access to the most recent knowledge, therapeutics and technology. The consequences of limited or delayed access to this expertise, especially during the COVID-19 pandemic, are significant and can lead to misdiagnoses that can often mean unnecessary exposure to toxic chemotherapy agents, suffering or avoidable death.” Alvarnas serves as vice president of government affairs and senior medical director for employer strategy at City of Hope.

More than 187,000 Californians are diagnosed with cancer annually and thousands of these new cancer patients are misdiagnosed or placed on treatment regimens that are inappropriate or ineffective for their condition.

Cancer Patients Bill of Rights includes:

  • Cancer patients have a right to fully understand their diagnosis and be informed about treatment options in culturally appropriate and understandable language. 
  • Cancer patients have a right to a transparent and timely process that ensures direct access to an oncology specialist, diagnostic testing and accurate interpretations of those tests.
  • Cancer patients have a right to timely access to cancer subspecialists who have expertise in the treatment of their subtypes of cancers when complex decisions are needed. 
  • Cancer patients have a right to direct and prompt access to medical treatments for pain management and other services that support their overall health.
  • Cancer patients have a right to direct access to a National Cancer Institute-designated comprehensive cancer center and leading academic medical centers for the management of complex cancers that require multiple experts or high risk or emerging therapies.

City of Hope breast cancer survivor Kommah McDowell hailed the Cancer Patients Bill of Rights. McDowell went to City of Hope for a second opinion and treatment after her primary care doctor told her she was too young to have breast cancer despite a painful mass in her right breast. City of Hope breast cancer specialists diagnosed McDowell with two particularly rare and aggressive forms of breast cancer and successfully treated her with chemotherapy, radiation and surgery.

“All Californians should have access to doctors that specialize in their particular cancer and diagnostic testing from the moment they suspect they might have cancer,” McDowell said. “Fighting for that right is what saved my life and I want other patients to be afforded those rights from the start — it will not only make a difference in their lives but could help save them as well.” 

More about the proposed bill of rights, along with other resources and patient stories, can be found at the Cancer Care Is Different website unveiled today. Visit cancercarediff.org.

About Cancer Care Is Different

Cancer Care Is Different is a coalition-based campaign effort with the goal of adopting a cancer patients’ bill of rights and raising awareness of the need to improve cancer care delivery in California. Partners in this effort include City of Hope, California Chronic Care Coalition, American Cancer Society Cancer Action Network and International Myeloma Foundation.

About City of Hope

City of Hope is an independent biomedical research and treatment center for cancer, diabetes and other life-threatening diseases. Founded in 1913, City of Hope is a leader in bone marrow transplantation and immunotherapy such as CAR T cell therapy. City of Hope’s translational research and personalized treatment protocols advance care throughout the world. Human synthetic insulin, monoclonal antibodies and numerous breakthrough cancer drugs are based on technology developed at the institution.  AccessHopeTM, a wholly owned subsidiary, was launched in 2019 and is dedicated to serving employers and their health care partners by providing access to City of Hope’s exceptional cancer expertise. A National Cancer Institute-designated comprehensive cancer center and a founding member of the National Comprehensive Cancer Network, City of Hope is ranked among the nation’s “Best Hospitals” in cancer by U.S. News & World Report. Its main campus is located near Los Angeles, with additional locations throughout Southern California and in Arizona. For more information about City of Hope, follow us on FacebookTwitterYouTube or Instagram.

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